A bill to amend 1978 PA 368, entitled “Public health code,” by amending section 5431 (MCL 333.5431), as amended by 2002 PA 691, and by adding section 5431a.
This legislation mandates newborn screening for conditions such as phenylketonuria, galactosemia, and sickle cell anemia without requiring informed consent, and necessitates reporting positive results, including those for the MTHFR gene variant, to the infant's parents or guardians. The bill allows the Michigan Department of Health to charge a fee for these tests, subject to annual adjustments based on the Detroit Consumer Price Index and includes a hardship waiver.
Introduced
by
Referred to the Committee on Health Policy