2023 Senate Resolution 55

Whereas, Although over two million people around the world are living with neurofibromatosis (NF) and one in every 3,000 births is diagnosed with NF, it is still relatively unknown to the public; and

Whereas, NF affects all populations equally, regardless of race, ethnicity, or gender; and

Whereas, NF causes tumors to grow on nerves throughout the body and also can affect development of the brain, cardiovascular system, bones, and skin. The disorder can also lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer; and

Whereas, The Children’s Tumor Foundation (CTF) leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and, ultimately, a cure for NF; and

Whereas, CTF works to improve access to quality patient healthcare through its national NF Clinic Network and provides patient and family support through its information resources, youth programs, and local chapter activities; and

Whereas, Much remains to be done in raising public awareness of NF to help promote early diagnosis, proper management and treatment, prevention of complications, and support for research; now, therefore, be it

Resolved by the Senate, That the members of this legislative body recognize May 2023 as Neurofibromatosis Awareness Month.